I was only 17 months old when I was first diagnosed with a brain tumour and I have been battling illness ever since. I have had over 13 brain surgeries among other surgeries and treatments. I suffer with hydrocephalus (water on the brain) which is treated with a mechanical pump in my brain called a 'shunt' and I also have drug resistant epilepsy. I was diagnosed with end-stage renal failure earlier this year and although I am currently in ‘recovery’, I now undergo regular testing to monitor this. This now affects and limits what medical treatment I can receive for my other conditions and as you can imagine, this has made life even more challenging than it already was!
Like most teenagers I am interested in football, music, video games, but unlike most I need 24-hour support. Due to my long-term illnesses I spend a great deal of time in hospital which isn't just tough because of the medical treatment but it also means I miss a lot of time from school. A lot of children quite naturally complain about having to go to school, but they don’t realise that school is not just about education it is also about learning how to interact with other children and how to make and keep friendships.
Over the years every time I started to make friends at school I would end up back in hospital. By the time I returned to school the friendship group had naturally moved on and I found myself having to start all over again. Things were tough, and I never got invited to birthday parties or to anyone’s house after school for dinner or to just hang out and socialise!
Chronic illness and disability affects an entire family; siblings are affected because there are so many things that they cannot do together as a family and usually one parent has to become their child’s carer which means they are unable to work, so money is often scarce too! Most of us are all too aware of the huge impact our conditions already have on our families and we really don’t want to cause them any more distress, so we don’t tell them what is going on. This means we feel even more lonely and isolated - I felt I couldn't tell anyone about my experiences, good or bad as I just didn't have any friends to talk to.
However, I discovered that I was far from alone and that there are over 1 million children in the UK that miss school due to a long-term illness and that is when the idea of Friend Finder began now called A World With Friends.
A World With Friends has grown rapidly and in our very first year we welcomed over 200 children into our A World With Friends community and helped them make friends. We have now helped thousands of children and we are inundated with requests globally from children and their parents who want to know when we'll be coming to their part of the world.
In 2017 we held our first ever prom for 150 chronically ill and disabled teens and their carers at The Guildhall in Portsmouth. It was amazing over £15,000 was raised, dresses, suits and shoes were all donated, we even had people doing the children’s hair, and makeup was done by students from a local college! These teens who would not have been able to attend their own schools’ proms were able to come to The Guildhall for the night of their lives! We had so many children wanting to attend that in 2018 the following year we held three proms, one in Portsmouth, one in Birmingham and one in London.
A World With Friends success has exceeded my wildest expectations; my 16th birthday video went viral on Facebook and received over 30 million views, I have been interviewed by the national press, appeared on national television, filmed a CBBC documentary about my life, written a book and received many prestigious awards for my work – I even traveled to Hawaii in 2018 to receive a Bakken Invitation Award part of which was a $20,000 prize, which I am hoping will help A World With Friends go global.
In November of 2018 after several years of operating as a community group and lots of paperwork we became a registered charity; A World With Friends is our registered name. This will enable us to help even more children and young people.
I want to prevent any child from feeling that awful loneliness and isolation that I felt and if A World With Friends can help just 1% of those one million children (10,000) to find a friend then that would make an amazing difference!
Like many children affected by chronic illness and disability, I know my condition cannot be cured and it is life limiting, but I am not going to let anything stop me from helping other children that are experiencing the same things that I did!
I truly believe that having a friend is one of the most important things in life and is key to our mental and physical wellbeing. Everyone needs someone to talk to, to smile, to laugh and sometimes cry with!
Picture Courtesy of Philip Haynes
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Hi I'm Lewis and welcome to my website.
I am seventeen years old and founder of a registered national children's charity called A World With Friends.
I started this charity when I was fourteen years old to help lonely and isolated children like me. I live with my family in Portsmouth.
It has been an amazing three years, A World With Friends has grown beyond my wildest expectation, hosting the first ever prom for chronically ill and disabled children. I have won awards that I never dreamed of and wrote about my life and this incredible journey in my book "Looking at the Stars"
"A World With Friends"
Formerly known as Friend Finder Official
Registered charity no. 1175539